Monthly Archives: October 2013

From Her Words Again…

At 4 months its been an incredible journey thus far.  We have had so many ups and downs.  A lot of downs.
But, as my contractors wife text me one day, Dom says he always hears you and Dave laughing while his working…..   He says you are always happy?
I told her, we make the best out of what we have.  We are best friends and truly like one another – we do our best in a situation we have no idea how to act.
Her response…….. a big smile :-)
Its been awhile since I wrote.  Its been a journey often times very frustrating with the medical side.  Ive tried very hard to be a good nurse but at times you have to give up and let the professionals do it.  Dave has unfortunately, gone backwards since leaving Rehab last time.  He was pretty much 100% dependent on myself.  Since our hospital stay at Walnut Creek Kaiser on Friday, Oct 4th
2013, his legs have gone down to the “skinny” side.  He told me tonight  – I never thought I would be so happy to have chicken legs….  He wants them as lite as they can be so he can move!!
We were very happy to be back at Vallejo as we had a good experience the first time.
Dave now has a hospital bed in our room with a low air mattress.n  It’s been so difficult as his sole care caregiver…  I have wanted to take him to the ER on several occasions but think……..ok, we have a Home Health Nurse coming to the house,  she will tell me to take him.  Well, after Kaiser fired the first Home Care Company and brought in their own home Health Nurse – after 3 days of taking care of Dave, she wanted us to go to the ER as she felt his care was in need of a higher level.
I took him to the ER in Walnut Creek and  he stayed there for 10 days .
Now he has been transferred back to Kaiser Rehab in Vallejo.
From a wife’s perspective daily:  My light is on in the car for my tire – it needs air….  Oh, Dave takes care of that!    I bought a new printer – need to set up the wireless  function – Oh Dave takes care of that…      I need to set up all of the TV’s with their cables…. Oh Dave takes care of that…    He takes care of SO many things for me – I never realized.  Not to mention the daily tasks of…   of 3 garbage cans out on Wednesday nights,  Recycle, Trash, Hanging something for me, bringing in something heavy from the car.
I’m lost without this incredible man..  I’m pretty independent but you don’t realize how much your partner and you do together.  You don’t realize in a good marriage how much a partnership can be horribly missed when he is just “not home” for a period of time.  Not to mention when he’s home he needs to re-learn how to do these simple tasks.
Dave had a good day in Rehab today after 3 bad days of Rehab.  His initial experience back in Rehab was really bad and not encouraging for any of us that knew how good it was before.
Thank you to Martin Szwarc  for showing up and staying with him for the whole afternoon/evening when I had to take the kids home.
dave
Also, thank you Tim Scarrot and Harley Barnes for showing up and cheering him up.
Again, thank you to all of our friends & family who continue to make sure I’m not lonely while he’s been away, and makes sure he’s not lonely while in the hospital.  Also,those that help me around the house, it’s so helpful  – I’m thankful to all .     David and I will be eternally grateful.
I love this man, my goal is to help him get stronger and become more independent so he can get out and be the man he wants to be again.
This is our goal – pray that our goal comes true :-)
On the way to Laguna Seca a few weeks ago Dave and I heard a song on the radio that he just looked at me and said, “Sweet Annie”
We love these lyrics and we enjoy listening to this song.  The song is “Sweet Annie” by Zac Brown Band
I’ve changed “one word” in the song below…
Sweet Annie: by Zac Brown::
Lyrics:
I’ve been burning bright, for so long I can’t remember
Pretty girls and late night bars seem to be my line of work 
 
Believe me when I say, I can’t stay forever
This man had all he can stand, time to lay this body down.
 
Sweet Annie, Can I stay with you awhile?
Cause this roads been putting miles on my heart
 
Sweetheart I’ve been living in a fantasy
 But one day lightening will strike, and my bark will lose its bite
 
but don’t give up on me
Sweet Annie

Sweet Annie
I know I promised you a life
 
But an empty bed and the words I said don’t carry any weight
If I could take back yesterday find a way to start it over
 
Turn around put the “BIKE” down I’d pray it’s not too late
 
Sweet Annie
Can I stay with you a while?

Cause this roads been putting miles on my heart
 
Sweetheart I’ve been living in a fantasy
But one day lighting will strike, and my bark will lose its bite
 
But don’t give up on my,
What will be, will be
Sweet Annie
 
Turn out the lights
these hands alone to hold you
 
Fall all over you,
all over you again,
 
 
 


Anneliese

We are unable to upload photos at the moment, but here are a couple videos from rehab take #2!

Back to the Big House AGAIN, after one of the best days ever!!

Hello Everyone

Since last time I’ve blogged a lot has happened…. Great and not so great!

On Saturday, Sept. 28th , Anneliese and I headed south to Monterey to watch my good friend,  Steve Rapp,  try to rap up the Harley Davidson XR 1200 title.  On Friday I was talking to Wayne Rainey and told him I was heading down that way on Saturday and he invited Anneliese and I over for Coffee.  First we stopped at Embassy Suites in Monterey to pick up our tickets from will call.  Steve left us tickets but the only thing there was a parking pass.    We decided to go to Wayne’s and deal with the mix up with the tickets at the track.  We arrived at Wayne’s house at 10:30, we were greeted by his wife Shae, Wayne, his son Rex as well as a few of his friends up from college.  Shae whipped us up amazing breakfast burritos – while Wayne and I talked about the Races that day at Laguna Seca.  After breakfast, Wayne showed me how he transfers into his pool.  He uses a platform to transfer from his chair down into the pool.  From there, he showed me his garage and inflated my wheel chair tires – which he saw – were a little on the low side.   Meanwhile, Anneliese and Shae were comparing stories, as well as Shae teaching her a few shortcuts when it comes to helping me with a few things. After my tires were pumped up, Wayne asked if I wanted to see his trophy room.  I said yes, while trying to keep my excitement to a minimal!  Wayne’s trophy room was amazing, not only was there one YZR500 there were YZR 500’s! The trophies and racing pics brought me back to my childhood and watching Wayne race on TV – reminding me that racing was all that I wanted to do. Anneliese had no idea of who Wayne Rainey was until walking into his trophy room, after leaving- I think she finally got it.  Anneliese said to me as we were leaving for the track, Wayne and Shae are 2 of the nicest people she has ever met.  She said you would never know that Wayne is a 3 time Moto GP World Champion.  He is beyond humble and we appreciated the opportunity to get to know them both better.  He continues to call and check on me and I can’t begin to explain how much that means to me. We told Wayne about our ticket mix up and he graciously gave us tickets to get into the track. Once we got to the track and got settled we met up with Kenny, Lisa and Kyle Norman.  From there we saw JT and Paul, AFM’ers who were working at the event.  JT was able to get us pit passes and most importantly a parking pass in the pits – making it easier for us to get to the races.I gave her a huge hug and kiss and thanked them both for everything.  We started to head up to the garages,  because the world Superbike race was going to start in approx. 1.5 hours.  Unbelievably, it took us an hour an half to get to the garage as I was greeted by many long time friends and racers  – many who I haven’t seen since the accident.  It was overwhelming, and I was taken back on the amount of people coming up to me to just to say Hi or shake my hand.  My friend,  Matt Orange, just had a fall  in qualifying – when we saw him after,  he had me sign his helmet for good luck.    It turns out he got 11th the race!    The next day, I got a text from him saying he wants me to sign his whole bike- pretty cool. It was starting to get late in the day -and I knew Steve Rapp’s race was coming up.  We headed over to turn 3.    I was hoping to get a good view of the race and take some pics from this corner.    I saw Guy Berrysmith and Genn Graifman and I asked both of them where would be a good spot to watch the race. from my wheelchair.   They said, let’s go check.  Glenn came back and said, we will get you on the track where you can watch the race trackside.  I said, are you sure?  He said, come with me.  I proceeded to watch Steve Rapp win the race and the championship right on the track.  What a great day!! On the way home, I told Anneliese, thank you for such a great day, this has been the best day ever since June 2nd.  Thank you everyone for your graciousness and hospitality and making feel at home.

Sunday was fun, 2 of my buddies, Peter Moran and Tim Blasquez took me to see the movie Rush.  If you haven’t seen it and like F1 – I highly recommend it!

Monday came my Stanford Surgery.  Anneliese and I headed over around 11:30 – because of crazy traffic and construction at Stanford Hospital -we got there just at 1:00pm.
We checked in and waited…….  It turns out, the patient in front of me had his filter in for 28 years and it took my Doc 7 hours to get it out.  When they came to me at 4pm to tell me I was next, I asked them, you sure you don’t need a coffee break or something??  They laughed, this is what they do.  At 5pm, they rolled me in.  They allotted 3 hours for me but thankfully after 2 hours they were done.  They were SUCCESSFUL!!  They removed the filter that was undoubtedly causing me more pain than doing good.  My doc said that my main vein was 90% clogged.  Blood was trying to find other ways to get to my heart – working extra hard.  He said, my blood thinner, Coumadin, was clearly not doing its job.  He immediately took me off of that and put me on shots of another drug and then switching to a new drug for a blood thinner in 10 days.  He hopes these new drugs help the blood clots, we will go back in 3 weeks.  If not, he has other options he will try, such as a stent and so on.   We stayed the night in Palo Alto and made our way back home on Tuesday. I was tired on Tuesday and rested most of the day.

Wednesday was a good day with my new nurse coming daily to change my wounds and give us much needed info why I was feeling the way I was.  .  She mentioned I was severely anemic among many other things. Wednesday also brought something I’ve wanted for a long time.  I purchased a used 2006 cop car from the auction.  Berto picked it up for me and brought it over.  This will be my new ride when I can drive!  I can throw my wheelchair in and scratch up the sides all I want.  Pics below of this cool ride!  The kids love it – especially the spot lights!

Thursday, Craig came over and we went for a ride in my new car.  He took me to In and Out for lunch.   We proceeded  to do some Cop Car testing.  Craig is a Cop – he put my Crown Vic Cop Car through the Cop test and gave it the Cop seal of approval!

Thursday night I began to feel worse.  I was shivering and just miserable. Anneliese took my temp, I had a temp of  102.  In the AM, my home health nurse came in and immediately said….  I thought about you and your situation half the night.  My health situation was not going in the direction she wanted it to.  It appeared to be getting worse.  She said for us to pack up and head to the  ER – she would call before hand and let them know her patient was coming in.  We arrived at the ER, and after 6 hours we were admitted yet again to the hospital – with a list of reasons why.
On Wednesday we had all of our moving boxes delivered from our storage.  Anneliese was overwhelmed with all the boxes in the house and then me getting sick again.  It turns out, when she arrived Friday evening, after getting me all settled in at the hospital, she was shocked and incredibly emotional when she saw the house.  We had 4 incredibly thoughtful people, Antonieta Lee, Jennifer Smart, Megan Majestic and Kelly Erb unpack EVERY single box and put everything away in its place while we sat all day in the ER.
They even went to Target, Bed Bath & Beyond, Ace Hardware to get racks for kitchen cabinets, bins for pantry, hampers, picture hanging stuff – they broke up boxes, took them to recycle etc.  Anneliese said she sat in the empty house and cried for awhile.  It was overwhelming the goodness in people and how much this gesture helped her at this crazy time.  For her to come home and be able to have dishes,  pots and pans to cook is amazing for her.  It finally feels like our home.  Thank you all for this amazing gesture of kindness, it’s truly incredible how friends and family have continued to step up to help us in these difficult times without even asking.  It’s so amazing how many great people there are out there.  Thank you over and over.

I am in the hospital because I have a UTI, C-diff which is an infection that can occur after taking antibiotics.  One of the main reasons, other than those, are my wounds.  Tomorrow I will meet with a surgeon and determine if they can go in and surgically remove dead tissue and  see how deep they are.  I also will  have a J-tube (feeding tube) put in to help with my nutrition.  After tomorrow we can better determine what my next steps will be.  There is discussion of putting me in a Skilled Nursing Home – I’m certainly not crazy about this idea but know the level of care is around the clock.  Anneliese does her best but these sores require her to turn me every 2 hours if not 1 hour – 24/7.  It will all determine on what they find Monday and what we all decide is the best for me.

Thanks to my friends and family who came to see me this weekend and had to wear these silly gowns and rubber gloves.  Thanks Mom and Dennis for bringing those awesome cookies.

Again, thanks for all your posts, comments and support.  I hope to see you all on November 18th.

PS: Something is wrong with posting pictures and all that I can post is the picture below. I will post more as soon as I can.

Dave

me and wayne