Since I last posted, I had a really tough week physically and ultimately emotionally. My stomach just wouldn’t allow me to eat and I began eating only soup and plain white rice. As Anneliese was watching me get thinner and thinner and my bed sores looking worse – she decided on Friday – enough was enough and loaded me up and took me to the ER. Even though I had minimal energy, I told her, we are not leaving until my custom cool wheelchair gets here. I’m not riding in that other one one more minute. Once I received it, I went over all the bells and whistles (thanks to all of your generous donations!). It’s incredible! Anneliese broke it down, put me in the car and put my new “wheels” in the back and drove to the ER. Friday the 13th it was… We were there 8 hours until they said, you are here with us for a few days. I checked into my new digs where I can only hope they are going to help me figure out why I feel sick 23 out of 24 hours a day. I had an endoscopy Monday where they have found I’m not digesting my food until the next day. I have only been able to eat if they give me strong pain medicine. A team of pain docs came in and told me they don’t want me on these if I can handle it (which I’m grateful for). Although, they do want me taking them if i dont feel like eating. Eating is a priority – I’m a little malnourished and need to gain weight and get stronger in order to heal. If anyone wants to bring me high caloric bland food, I’m in! Pain Docs say that my “Chi” is all screwed up and we need to get it back on track. They ordered Acupuncture for me and performed it at bedside on Tuesday. It was pretty cool. Anneliese has done some research and had already contacted a doctor in San Jose that specializes in helping SCI patients. She’s been trying to convince me to try it. These pain docs here actually helped convince me she might be on to something!
My wounds are not too good at all – especially my tail bone. I have a wound nurse coming to the house weekly now. At the hospital, the wound nurse taught Anneliese how to “slough” off the dead skin and pack the wound with Medi-Honey. Anneliese will be able to take care of the wounds on the “off” days the nurse won’t be there.
The day I went to the hospital – my brother and sister in-law moved out. The house was pretty empty and a little scary without me there. Anneliese and Eddie chose to stay at Alli and Jacks for the first couple of nights – at least until they got TV. Hopefully we can get our furniture here in the next week or so. We have our bedroom set up so that is nice.
My Ex-wife Jen has been so great in helping Anneliese and I with everything we need. Anneliese gave her a much needed list today for Target – Jen and my son, Jack, went shopping They came back with all of our essentials. Before Jen left for shopping, she was at our house arranging the house to get cleaned after the move out.
Jen was at the house with her house cleaner and hears a knock on the door. Our next door neighbors’ girlfriend is at the door worried about her boyfriend who hasn’t answered her calls. Jen asks her – “what can I do for you to help you.?” She asked Jen to go around the back to look in the window to see if she can see anyone. The girlfriend didn’t feel comfortable doing by herself. Jen looks through the window and finds him in an “unnatural” position on the bed. She knew she needed to call 911 immediately! He was only 56. Jen texts Anneliese – “before you come home, call me.” She doesn’t want Anneliese to pull up to see police & fire outside. She gets a hold of her and says, thank God it was her there and not Anneliese! It might have been too much if Anneliese had to see what Jen did!! Crazy how things play out!! Our street name is Shady Lane…. Lots going on – on Shady lane!!
Anneliese is working hard, organizing our items to be moved from San Jose to Walnut Creek. She’s getting the house touched up with paint, fixing some electrical issues as welI as slowly making it our home again. I have been so incredibly blessed with the most amazing friends and even more an amazing wife. My friend Kenny went out and bought us 4 huge racks for our garage, put them together, organized the few items we had in the garage, swept it all out, found a hose – watered all the brown spots on our grass. He took care of things like it was his
house. My other good friend, Mike, came over to help my poor wife and Eddie get TV in our house. We had a cable box that was ordered but it didn’t work. He worked on this and spent an hour on the phone with the provider. Finally, a couple days later he was able to find another box to make it work. We finally have TV & Internet!! Thanks so much Mike for taking the time to continuously help us..
I just want to say thank you to our incredible friends that continue to help us when we are stranded without the help of me doing things. Thanks to all that continue to help us become functional when I’m not able to help. Thank you Auntie Kelly, who on a drop of a dime, came on Friday to help Anneliese with Eddie when I had to go to ER – and ALWAYS is there for us to drive, stay and simply call to ask if there is anything she can help with.
It continues to amaze both Anneliese and I – people’s willingness to drop everything to help us. We never have to ask, thank you everyone for your unbelievable graciousness in these really tough times. It helps me out when my wife gets the much needed help that I use to do for her. Ill get there, but some things like hanging a new light is just too difficult for me. The daily messages that Anneliese receives offering their support and help is wonderful.
Both of our employers continue to be so supportive. My Employer, ASA Computers, has been so supportive with visits, emails, phone calls. Anneliese’s Boss has rearranged her Territory to the East Bay and continues to include her on decisions being made while she is out. She is so grateful for the support of her co-workers and keeping things going while she is on this leave of absence to help me.
I finally got checked out of the hospital on Tuesday night with 3 new additional medications. Thanks Craig, for hangin with us all day of discharge – you had me laughing so hard that i think i scared the hospital staff! My new “weakened” lungs result in a unique new laugh, between Craig, Anneliese and I, i think there were a lot of tears- this time in a good way!, Officer Jelly Donut – aka, OJD, your damn stories kill me and make me laugh like Horshack from ThevTV show, Welcome Back Kotter”. You’re a damn good friend.
Wednesday was our long anticipated appointment with the Doc at Stanford for the filter and blood clots. We think it was fantastic! He believes he can get it out and definitely believes they do more harm than good at this point. He also confirmed Anneliese’s speculation that this can be causing some of my stomach issues. He will review my last CT scan and confirm I’m stable enough and then will schedule.
Before we had our appointment at Stanford we stopped by my Employer, ASA. We didn’t let anyone know we were coming so it made it that much more of a surprise. Everyone was so surprised and welcoming and made me feel I hadn’t been gone a day. They all stood around me like I’m some kind of celebrity. The owner and his wife of the company assured Anneliese they are there to support us in anyway. She even mentioned they are available to help move us on the weekends! I work with incredible people! Thank you!
Tonight we had dinner with little Eddie and his dad in Los Altos. Anneliese’s other sister in law, Theresa came along with her kids, Jackson, Jessica and Jenna. The older kids took the time out to come be the restaurant to give me a hug and visit awhile before they jetted out to tutoring classes. Theresa came in and looked at me and gave me the biggest hug, she had to leave because she started to cry. She came back in and I told her, don’t start because I will get started and I won’t stop either. We had some great laughs and great family time. It was really good and felt so good to be at the table with all of them. Ps thanks for the din din Theresa.
Lastly, I want to continuously thank my buddies, Pete and Berto. They are working so hard on the track day, auction and benefit on November 18th. Thank you guys for your relentless hard work and dedication to our friendship.
Gosh, it’s good to be back in our home - just really love our spot here in Walnut Creek. Looking forward to getting our things moved here soon. Here’s to a good week!
Thanks for the continued support and messages – love reading them.